BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Pompe Disease News - ECPv6.18.0//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://pompediseasenews.com X-WR-CALDESC:Events for Pompe Disease News REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20230312T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20231105T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20270314T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20271107T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20260925 DTEND;VALUE=DATE:20260927 DTSTAMP:20260514T195603Z CREATED:20260514T195603Z LAST-MODIFIED:20260514T195603Z UID:10000009-1790294400-1790467199@pompediseasenews.com SUMMARY:MDA Engage – Chicago DESCRIPTION:Join us just outside of Chicago for the MDA Engage Symposium! This in person gathering is designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. \n \n \n \n \n \n\nEvent Day 1: Friday\, September 25\nWelcome Reception: 5:00-7:00pm \nEvent Day 2: Saturday\, September 26\nRegistration and Breakfast: 8:00-9:00 a.m.\nLearning Sessions: 9:00 a.m. – 4:45 p.m. URL:https://pompediseasenews.com/event/mda-engage-chicago/ LOCATION:Westin Chicago Lombard\, 70 Yorktown Shopping Center\, Lombard\, 60148\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260919 DTEND;VALUE=DATE:20260920 DTSTAMP:20260514T203553Z CREATED:20260514T203553Z LAST-MODIFIED:20260514T203553Z UID:10000018-1789776000-1789862399@pompediseasenews.com SUMMARY:Muscle Walk of Minnesota DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \n \n \n \n \n \n\nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal. URL:https://pompediseasenews.com/event/muscle-walk-of-minnesota/ LOCATION:Wolfe Park\, St. Louis Park\, MN\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260917 DTEND;VALUE=DATE:20260919 DTSTAMP:20260514T202905Z CREATED:20260514T202905Z LAST-MODIFIED:20260514T202905Z UID:10000015-1789603200-1789775999@pompediseasenews.com SUMMARY:Sam Osborn Memorial Golf Tournament DESCRIPTION:Join us for the annual Sam Osborn Memorial Golf Tournament\, where we come together on the fairways to celebrate the life of an extraordinary individual and raise funds for causes close to Sam’s heart. This two-day event combines the joy of golfing with the spirit of giving… and the chance to win some ridiculous prizes. \n \n \n \n \n \n\nEvent Day 1: Day 1: Thursday\, September 17\, 2026: Golf; Registration: 10:30 a.m. | Tee time: 11:30 a.m. \nEvent Day 2: Day 2: Friday\, September 18\, 2026: Golf + Concert; Registration: 10:30 a.m. | Tee time: 11:30 a.m. Dinner\, auction\, and concert: 6-11 p.m. URL:https://pompediseasenews.com/event/sam-osborn-memorial-golf-tournament/ LOCATION:Tiburon gold club & Banquet facility\, 10302 SOUTH 168TH STREET\, OMAHA\, NE\, 68136\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260718T083000 DTEND;TZID=America/Chicago:20260718T170000 DTSTAMP:20260520T191726Z CREATED:20260514T195249Z LAST-MODIFIED:20260520T191726Z UID:10000008-1784363400-1784394000@pompediseasenews.com SUMMARY:MDA Engage – Hershey\, PA DESCRIPTION:Join us in Hershey for an energizing in person gathering designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. URL:https://pompediseasenews.com/event/mda-engage-hershey-pa/ LOCATION:Hershey Lodge – Confection Hall\, 325 University Drive\, Hershey\, PA\, 17033\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260623 DTEND;VALUE=DATE:20260624 DTSTAMP:20260514T202643Z CREATED:20260514T202643Z LAST-MODIFIED:20260514T202643Z UID:10000014-1782172800-1782259199@pompediseasenews.com SUMMARY:6th Annual Boston Muscle Team Golf Outing DESCRIPTION:Join us for a day of progress! Let’s unite our communities and bring awareness to neuromuscular disease. Together with MDA\, we will continue to lead the way in accelerating care\, advancing research\, and advocating for the support of families. URL:https://pompediseasenews.com/event/6th-annual-boston-muscle-team-golf-outing/ LOCATION:Pinehills Golf Club\, 54 Clubhouse Drive\, Plymouth\, MA\, 02360\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260607 DTEND;VALUE=DATE:20260822 DTSTAMP:20260514T204021Z CREATED:20260514T204021Z LAST-MODIFIED:20260514T204021Z UID:10000021-1780790400-1787356799@pompediseasenews.com SUMMARY:MDA Summer Camp (with volunteer opportunities) DESCRIPTION:At MDA Summer Camp\, every camper finds a place to belong in a community rooted in inclusion\, friendship\, and fun. Here\, kids and young adults with neuromuscular disease grow in confidence as they take on new adventures\, make lifelong friends\, learn to self-advocate\, and discover just how much they can do. \n \n \n \n \n \n\nEach summer\, campers ages 8-17\, attend these life-changing\, overnight camps around the U.S. – at no cost to their families\, thanks to our generous supporters.Camp Can Change Your Life if You Let It\nMDA Summer Camp wouldn’t be possible without people like you. Each summer\, hundreds of volunteers serve as counselors and medical team members during weeklong\, overnight Summer Camp programs to help make it a safe\, fun\, and memorable experience for all participants. \nAs a volunteer\, you will support campers as they participate in adaptive camp activities\, games\, dances\, mealtimes and more. You’ll also take on the rewarding role of caregiver\, friend and confidence builder\, making an impact that lasts long after camp ends. URL:https://pompediseasenews.com/event/mda-summer-camp-with-volunteer-opportunities/ CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Summer-Camp-700-x-394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260516 DTEND;VALUE=DATE:20260517 DTSTAMP:20260514T203351Z CREATED:20260514T203351Z LAST-MODIFIED:20260514T203351Z UID:10000017-1778889600-1778975999@pompediseasenews.com SUMMARY:Muscle Walk of Illinois DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \n \n \n \n \n \n\nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal. URL:https://pompediseasenews.com/event/muscle-walk-of-illinois/ LOCATION:Cantigny Park\, Wheaton\, IL\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260514 DTEND;VALUE=DATE:20260516 DTSTAMP:20260514T202501Z CREATED:20260514T202501Z LAST-MODIFIED:20260514T202501Z UID:10000013-1778716800-1778889599@pompediseasenews.com SUMMARY:Mike Bellotti's 33rd Annual Toast to Strength Gala & Golf Tournament DESCRIPTION:Join us for a day of progress! Let’s unite our communities and bring awareness to neuromuscular disease. Together with MDA\, we will continue to lead the way in accelerating care\, advancing research\, and advocating for the support of families. URL:https://pompediseasenews.com/event/mike-bellottis-33rd-annual-toast-to-strength-gala-golf-tournament/ LOCATION:Eugene\, Oregon\, Eugene\, OR\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260507T080000 DTEND;TZID=America/Chicago:20260507T170000 DTSTAMP:20260514T202245Z CREATED:20260514T202245Z LAST-MODIFIED:20260514T202245Z UID:10000012-1778140800-1778173200@pompediseasenews.com SUMMARY:MDA Golf Classic DESCRIPTION:The MDA Golf Classic has united supporters and the community to raise critical funds for the Muscular Dystrophy Association (MDA). For 75 years\, MDA has led the way in accelerating research\, advancing care\, and advocating for families living with neuromuscular disease. In Arizona\, more than 6\,500 individuals are living with NMD and rely on MDA’s network of 3 Care Centers across those areas\, which collectively provide over 2\,000 visits each year. URL:https://pompediseasenews.com/event/mda-golf-classic/ LOCATION:Dobson Ranch Golf Course\, 2155 S Dobson Road\, Mesa\, AZ\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Golf-Event700x394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260502 DTEND;VALUE=DATE:20260503 DTSTAMP:20260514T203135Z CREATED:20260514T203114Z LAST-MODIFIED:20260514T203135Z UID:10000016-1777680000-1777766399@pompediseasenews.com SUMMARY:Muscle Walk of Missouri DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \n \n \n \n \n \n\nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal. URL:https://pompediseasenews.com/event/muscle-walk-of-missouri/ LOCATION:Forest Park\, St. Louis\, MO\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20250316T070000 DTEND;TZID=America/Chicago:20250319T120000 DTSTAMP:20250226T203305Z CREATED:20250226T203305Z LAST-MODIFIED:20250226T203305Z UID:10000006-1742108400-1742385600@pompediseasenews.com SUMMARY:MDA: Clinical & Scientific Conference DESCRIPTION:Join us in shaping the future of neuromuscular disease research and care at the MDA’s 2025 Clinical and Scientific Conference. The record number of participants from around the globe at our 2024 conference underscores the vital role our gathering plays in advancing the field of neuromuscular medicine and bringing ever more powerful therapies to people living with neuromuscular disease. No other conference in our space commands the attention and engagement of clinicians\, researchers\, allied health professionals\, industry\, and patient advocates quite like ours. \n \n \n \n \n \n\nOur collective efforts over many years have brought us into a prolific era for drug development. This Era of Treatments has been marked by groundbreaking discoveries and innovative therapies that bring new hope to our community. These include major advances in genetic therapies\, treatments for ultrarare conditions and parsing emerging data points that help us visualize new paths forward for ending neuromuscular disease. The value of being part of this conference is unparalleled. At the MDA Clinical and Scientific Conference\, you and your organization gain visibility and alignment with cutting-edge research and compassionate care\, and benefit from discussions about the latest scientific advancements\, collaborative opportunities\, and opportunities to shape the future of neuromuscular medicine. The momentum we are building is extraordinary. The synergy of our diverse expertise and shared dedication propels us towards unprecedented achievements and meaningful change for children and adults pursuing longer\, stronger\, more independent lives. Join us and be part of a global movement that continues to push the boundaries of what is possible. \nIf you are a patient or caregiver interested in attending the in-person conference or an MDA volunteer interested in attending virtually\, please complete this form before registering: https://web.cvent.com/event/a0e62898-47b9-4b88-88b8-aca631f6a834/register?RefId=2025+Attendee+Registration+Email&rp=84e6d5ae-6b69-4e5c-b84d-614504db238c URL:https://pompediseasenews.com/event/mda-clinical-scientific-conference/ LOCATION:Hilton Anatole\, 2201 N Stemmons Freeway\, Dallas\, TX\, 75207\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2025/02/2025-Conference-Lockup-final.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241109T100000 DTEND;TZID=America/Chicago:20241109T153000 DTSTAMP:20241023T152849Z CREATED:20241023T152849Z LAST-MODIFIED:20241023T152849Z UID:10000005-1731146400-1731166200@pompediseasenews.com SUMMARY:MDA Engage Symposium: Dallas\, TX DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, myotonic dystrophy\, ultra-rare neuromuscular diseases\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. URL:https://pompediseasenews.com/event/mda-engage-symposium-dallas-tx/ LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, TX\, 75207\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Dallas.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241109T100000 DTEND;TZID=America/Chicago:20241109T153000 DTSTAMP:20241023T152842Z CREATED:20241023T152842Z LAST-MODIFIED:20241023T152842Z UID:10000004-1731146400-1731166200@pompediseasenews.com SUMMARY:MDA Engage Symposium: Irvine\, CA DESCRIPTION:This Engage Symposium will offer sessions on myasthenia gravis (MG)\, Pompe disease\, spinal muscular atrophy (SMA)\, and myositis\, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance\, mental health\, and exercise. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Tahseen Mozaffar\, neurologist at UC Irvine chairing this Engage Symposium. URL:https://pompediseasenews.com/event/mda-engage-symposium-irvine-ca/ LOCATION:The Beckman Center\, 100 Academy Way\, Irvine\, CA\, 92617\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Irvine.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241102T100000 DTEND;TZID=America/Chicago:20241102T153000 DTSTAMP:20241023T152856Z CREATED:20241023T152856Z LAST-MODIFIED:20241023T152856Z UID:10000003-1730541600-1730561400@pompediseasenews.com SUMMARY:MDA Engage Symposium: Stanford\, CA DESCRIPTION:This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, myasthenia gravis (MG)\, limb-girdle muscular dystrophy (LGMD)\, myotonic dystrophy (DM)\, Charcot-Marie-Tooth disease (CMT)\, Pompe disease\, Lambert-Eaton myasthenic syndrome (LEMS)\, Friedreich Ataxia (FA)\, facioscapulohumeral muscular dystrophy (FSHD)\, and several others. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and companies supporting the neuromuscular community. \n \n \n \n \n \n\nMDA is pleased to have Dr. John W. Day\, neurologist at Stanford University chairing this Engage Symposium. URL:https://pompediseasenews.com/event/mda-engage-symposium-stanford-ca/ LOCATION:Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall\, 291 Campus Drive\, Stanford\, CA\, 94305\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Stanford.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20241005T100000 DTEND;TZID=America/Chicago:20241005T153000 DTSTAMP:20241023T152903Z CREATED:20241023T152903Z LAST-MODIFIED:20241023T152903Z UID:10000002-1728122400-1728142200@pompediseasenews.com SUMMARY:MDA Engage Symposium: Atlanta\, GA DESCRIPTION:This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS)\, spinal muscular atrophy (SMA)\, Duchenne muscular dystrophy (DMD)\, Becker muscular dystrophy (BMD)\, research and clinical trial updates for all diagnoses\, as well as sessions on daily living such as nutrition\, exercise\, and transitioning to adulthood. Attendees will also have the chance to connect socially with others in the community and browse our Community Resource Hall to learn about other organizations and businesses supporting the neuromuscular community. MDA is pleased to have Dr. Jun Ho Kim from Children’s Hospital of Atlanta and Dr. Jonathan Glass from Emory University co-chairing this Engage Symposium. URL:https://pompediseasenews.com/event/mda-engage-symposium-atlanta-ga/ LOCATION:Emory Conference Center Hotel\, 1615 Clifton Road\, Atlanta\, GA\, 30329\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2024/10/MDA-Engage-Symposium-Atlanta.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT END:VCALENDAR