BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Pompe Disease News - ECPv6.18.0//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Pompe Disease News X-ORIGINAL-URL:https://pompediseasenews.com X-WR-CALDESC:Events for Pompe Disease News REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20270314T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20271107T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20280312T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20281105T070000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20261023 DTEND;VALUE=DATE:20261025 DTSTAMP:20260514T195810Z CREATED:20260514T195810Z LAST-MODIFIED:20260514T195810Z UID:10000010-1792713600-1792886399@pompediseasenews.com SUMMARY:MDA Engage - Dallas DESCRIPTION:Join us in Dallas for our MDA Engage Symposium! This in person gathering is designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. \n \n \n \n \n \n\nEvent Day 1: Friday\, October 23\nWelcome Reception: 5:00-7:00pm \nEvent Day 2: Saturday\, October 24\nRegistration and Breakfast: 8:00-9:00 a.m.\nLearning Sessions: 9:00 a.m. – 4:45 p.m. URL:https://pompediseasenews.com/event/mda-engage-dallas/ LOCATION:Renaissance Dallas Hotel\, 2222 N Stemmons Fwy\, Dallas\, TX\, 75207\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261107 DTEND;VALUE=DATE:20261108 DTSTAMP:20260520T191745Z CREATED:20260514T200007Z LAST-MODIFIED:20260520T191745Z UID:10000011-1794009600-1794095999@pompediseasenews.com SUMMARY:MDA Engage: Stanford DESCRIPTION:Join us in Stanford for the MDA Engage Symposium! This in person gathering is designed for individuals living with neuromuscular disease and the people who support them. Our expert led sessions—guided by clinicians and specialists in the field—offer a mix of disease specific education and practical daily living insights\, ensuring there’s something meaningful for everyone. You’ll walk away with clear\, actionable insights to help guide informed decisions about your\, or your loved one’s\, care. Plus\, enjoy meaningful opportunities to connect with others in the community and explore a variety of informative exhibitor booths. URL:https://pompediseasenews.com/event/mda-engage-stanford/ LOCATION:Stanford\, CA\, Stanford\, CA\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/MDA-Engage-700-px.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261107 DTEND;VALUE=DATE:20261108 DTSTAMP:20260514T203717Z CREATED:20260514T203717Z LAST-MODIFIED:20260514T203717Z UID:10000019-1794009600-1794095999@pompediseasenews.com SUMMARY:Muscle Walk of Dallas DESCRIPTION:How the MDA Muscle Walk Works\nThe MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. Follow the steps below to live your best Muscle Walk experience. \n \n \n \n \n \n\nRegister\nStart a team\, join a team\, or participate as an individual. Click any of these links to register: Register as a participant or create a team. After you register\, you’ll have access to your own fundraising webpage. Customize your page with photos\, share your inspiration for participating\, and set your fundraising goal. URL:https://pompediseasenews.com/event/muscle-walk-of-dallas/ LOCATION:Dallas\, Texas\, Dallas\, TX\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Muscle-Walk-700x394-1.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20261113T173000 DTEND;TZID=America/Chicago:20261113T233000 DTSTAMP:20260929T174558Z CREATED:20260929T174558Z LAST-MODIFIED:20260929T174558Z UID:10000022-1794591000-1794612600@pompediseasenews.com SUMMARY:MDA Passport to a Cure Gala\, Scottsdale\, AZ DESCRIPTION:Passport to a Cure is a gala benefiting the community through the Muscular Dystrophy Association\, celebrating hope\, strength\, and community. \n \n \n \n \n \n\n  \nOrganizer Emails: kmortellaro@mdausa.org\, Ssmaw@mdausa.org URL:https://pompediseasenews.com/event/mda-passport-to-a-cure-gala-scottsdale-az/ LOCATION:The Westin Kierland Resort & Spa\, 6902 E Greenway Pkwy\, Scottsdale\, AZ\, 85254\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/png:https://pompediseasenews.com/wp-content/uploads/2026/09/unnamed-3.png ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20261114T180000 DTEND;TZID=America/Chicago:20261114T233000 DTSTAMP:20260929T175206Z CREATED:20260929T175206Z LAST-MODIFIED:20260929T175206Z UID:10000023-1794679200-1794699000@pompediseasenews.com SUMMARY:MDA Toast to Life Gala - Orlando\, FL DESCRIPTION:On November 14th\, 2026\, we invite you to be part of the Orlando Toast to Life Gala\, an evening dedicated to honoring lives touched by muscular dystrophy diseases and advancing the fight for a cure.  \n \n \n \n \n \n\n  \nOrganizer Email: phampton@mdausa.org URL:https://pompediseasenews.com/event/mda-toast-to-life-gala-orlando-fl/ LOCATION:Country Club of Orlando\, 1601 Country Club Drive\, Orlando\, FL\, 32804\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/png:https://pompediseasenews.com/wp-content/uploads/2026/09/unnamed-4.png ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261120 DTEND;VALUE=DATE:20261121 DTSTAMP:20261002T174110Z CREATED:20261002T174110Z LAST-MODIFIED:20261002T174110Z UID:10000025-1795132800-1795219199@pompediseasenews.com SUMMARY:2026 Berks Black N Blue Ball DESCRIPTION:The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson\, this unforgettable event brings together supporters\, community leaders\, and friends of MDA for a night of cocktails\, connection\, and impact. \n \n \n \n \n \n\nOrganizer Email: emclinn@mdausa.org URL:https://pompediseasenews.com/event/2026-berks-black-n-blue-ball/ LOCATION:Classic Harley-Davidson\, 983 James Drive\, Leesport\, PA\, 19533\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/png:https://pompediseasenews.com/wp-content/uploads/2026/10/unnamed-6.png ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261120 DTEND;VALUE=DATE:20261123 DTSTAMP:20261002T173409Z CREATED:20260514T203901Z LAST-MODIFIED:20261002T173409Z UID:10000020-1795132800-1795391999@pompediseasenews.com SUMMARY:Join MDA Team Momentum - 2026 Philadelphia Marathon Weekend DESCRIPTION:MDA Team Momentum is the Muscular Dystrophy Association’s endurance program\, uniting athletes of all levels to run\, walk\, or cycle to fight neuromuscular diseases. Participants fundraise and dedicate miles to accelerate research\, care\, and support for families. Team members receive customized training\, mentorship\, and race-weekend VIP experiences while building a strong\, inspiring community. Through dedication and shared passion\, this program transforms personal endurance milestones into\, funds\, hope\, and breakthroughs for individuals living with muscular dystrophy and related diseases. It’s a powerful way to make every mile count \n \n \n \n \n \n\nBy signing up to run the 2026 Philadelphia Marathon Weekend with MDA’s Team Momentum\, you are dedicating your miles to support those living with muscular dystrophy\, ALS\, and related neuromuscular disease to live longer\, more independent lives.   \nOrganizer email: mwaters@mdausa.org  URL:https://pompediseasenews.com/event/team-momentum/ CATEGORIES:MDA ATTACH;FMTTYPE=image/jpeg:https://pompediseasenews.com/wp-content/uploads/2026/05/Team-Momentum-700-x-394.jpg ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261205 DTEND;VALUE=DATE:20261206 DTSTAMP:20260930T184923Z CREATED:20260930T135955Z LAST-MODIFIED:20260930T184923Z UID:10000024-1796428800-1796515199@pompediseasenews.com SUMMARY:2026 Puerto Rico Muscle Walk DESCRIPTION:The MDA Muscle Walk is an inspiring event that unites communities throughout the country behind the mission to empower people living with neuromuscular diseases to live life to the fullest potential. \n \n \n \n \n \n\n  \nOrganizer email: resourcecenter@mdausa.org URL:https://pompediseasenews.com/event/2026-puerto-rico-muscle-walk/ LOCATION:Plaza de la Barandilla\, Plaza de la Barandilla\, Viejo San Juan\, Puerto Rico CATEGORIES:MDA ATTACH;FMTTYPE=image/png:https://pompediseasenews.com/wp-content/uploads/2026/09/image-20260930-162316.png ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20270321 DTEND;VALUE=DATE:20270325 DTSTAMP:20261002T180014Z CREATED:20261002T180014Z LAST-MODIFIED:20261002T180014Z UID:10000026-1805587200-1805932799@pompediseasenews.com SUMMARY:2027 MDA Clinical and Scientific Conference DESCRIPTION:Recognized as the leading international meeting dedicated to neuromuscular diseases\, the conference convenes renowned researchers\, clinicians\, affiliated health care providers\, academicians\, advocates\, industry innovators\, and advocacy leaders at a moment when scientific discovery is accelerating across the field. The program will feature plenary sessions\, thematic sessions\, industry sponsored forums and hundreds of peer-reviewed abstracts highlighting advances in next-generation clinical trial design\, biomarker development\, therapeutic delivery systems\, gene and RNA-targeted therapies\, and AI-enabled drug discovery that are reshaping how neuromuscular diseases are understood\, treated\, and managed\, underscoring a central reality driving the field forward: time is muscle. Early bird registration is available through December 31\, 2026. \n \n \n \n \n \n\nOrganizer email: mdaconference@mdausa.org URL:https://pompediseasenews.com/event/2027-mda-clinical-and-scientific-conference/ LOCATION:Rosen Shingle Creek\, 9939 Universal Blvd\, Orlando\, FL\, 32819\, United States CATEGORIES:MDA ATTACH;FMTTYPE=image/png:https://pompediseasenews.com/wp-content/uploads/2026/10/unnamed-7.png ORGANIZER;CN="Muscular Dystrophy Association":MAILTO:mfiance@mdausa.org END:VEVENT END:VCALENDAR