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Recent Posts
- Rare Disease Diversity Coalition Awards $600K to Combat Disparities
- Welcoming New Pompe Parents to a Supportive Community Brings Me Joy
- FDA to Decide on AT-GAA for Late-onset Pompe Around Mid-2022
- A Wave of Emotions Hits as My Son Is Discharged From the Hospital
- ‘Rare’ Documentary in Kickstarter Campaign to Raise $45K by Oct. 28
- New Data-sharing Program Aims to Speed Innovation in Rare Diseases
- New Cell-specific ERT Shows Promise in Mouse Study
- How Government Assistance Programs Help Me as a Single Parent
- Uplifting Athletes Tackles Funding for Rare Disease Research, Awareness
- Patients: Faster Diagnosis, Earlier Treatment, Better Education Needed