My 5-year-old son, Cayden, recently started a preschool program. When he started going, I was a little paranoid about…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
Typically, my 5-year-old son, Cayden, who has infantile-onset Pompe disease, has no problem going away with family for the…
My 5-year-old son, Cayden, was really looking forward to starting preschool at the end of February. But after only a…
Last week, we celebrated my son Cayden’s fifth birthday. Birthdays are a big milestone for all children, but this year…
Every other week, my son Cayden, who’s almost 5, receives an enzyme replacement infusion as part of his…
My soon to be 5-year-old son, Cayden, goes through a lot at his young age. Due to his infantile-onset…
My 4-year-old son, Cayden, has been seen by many different specialists over the course of his life. I often…
In today’s world, nurses are in high demand, and thus they’re also hard to come by. Because of…
Awhile back, I donated my 4-year-old son Cayden’s used adaptive equipment. He’d outgrown his old stander, so we no…
One of the first things people notice about my 4-year-old son, Cayden, is his lusciously long locks of hair. While…