Treatment and Lifestyle
Living With Pompe
For people affected by Pompe disease, certain aspects of daily life may need to be adjusted to manage limitations, treatment regimens, and symptoms.
Treatment Resources
Pompe Treatment Options
While ERT is the only type of treatment approved to date for Pompe, supportive therapies can help maximize ability to function…
Enzyme Replacement Therapy and Enzyme Stabilizers
Enzyme replacement therapy (ERT) is the only treatment option approved for Pompe disease. Ways to enhance the action of ERT are being investigated, including the use of enzyme stabilizers that help stabilize the functional protein/enzyme and enhance its delivery to the tissues.
The ERT Process: Preparation, Treatment, and Aftercare
There are many things to consider before undergoing enzyme replacement therapy. Learn more about…
Daily Life With Pompe
Managing Your Daily Routine
While the effects of late-onset Pompe disease on everyday life are far-reaching, there are steps…
Adaptive Equipment for People With Pompe
There are a number of adaptive devices available to help people living with Pompe disease….
Pompe Education
How Does Pompe Disease Affect Life Expectancy?
Life expectancy in Pompe disease depends on several factors such as the type of Pompe disease a patient…
Late-Onset Pompe Disease
Pompe disease may be evident within a few months of birth — called classic infantile-onset Pompe…
Perspectives
Dwayne’s Story: Adapting My Life to Smash Pompe
I’d never been on a flight longer than three hours, and hadn’t ever taken my electric wheelchair on a…
Expert Voice: Safe and Effective Exercise for People With Pompe
Pompe Disease News asked physical therapist Tracy Boggs to answer questions about…