In the United States, every child gets tested for a multitude of rare diseases and conditions at birth. However, each…
Articles by Keara Engle
Living with or caring for someone with a rare disease means that life is often hectic. Between the endless…
Soon, I will attend a meeting to discuss transitioning my 4-year-old son, Cayden, to elementary school during the next school…
From the time he was born four years ago until now, my son, Cayden, has struggled with eating orally. Because…
With Christmas right around the corner, I’ve had many people in our family ask what they can get my 4-year-old…
My 4-year-old son, Cayden, completed a sleep study in October. We’ve been waiting for his pulmonary specialist to…
As parents, we tend to put our children before ourselves — especially when they have special needs. Some of our…
A few weeks ago, my 4-year-old son, Cayden, had a rare occurrence in which the implanted port in his…
When you have a child with a rare disease, it can be difficult to find people who are both…
Over the years, our family has become quite familiar with various types of medical and adaptive equipment. My 4-year-old…