I can remember my 4-year-old son’s first surgery like it was yesterday. Cayden was just shy of 2 months old…
Articles by Keara Engle
While my 4-year-old son, Cayden, is no stranger to specialists, it’s always a bit nerve-wracking to meet a new…
It all starts with the dreaded cough and snotty nose. Next thing you know, you’re rushing your child to the…
Recently, I reached out to some other moms in our Pompe family to ask about a concern I’ve had…
My 4-year-old son, Cayden, has been receiving multiple therapies every week for years. He started physical therapy when he…
Recently, my 4-year-old son, Cayden, made the long-awaited change to Nexviazyme (avalglucosidase alfa) infusions, a new treatment option for…
Being a parent can be exhausting. Whether the child is a newborn, a toddler, or even a bit older, there…
Family reunions are big and important events on my dad’s side of the family. Not long ago, my grammy (grandmother)…
Last week, we had our last home infusion for the summer. It was a bittersweet moment for sure. My 4-year-old…
Last week, my 4-year-old son, Cayden, had a telehealth appointment with a pediatric psychologist. She works in the behavioral…