A little over a year ago, I wrote a column discussing the topic of family planning. Recently, we discovered…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
A few weeks ago, during my 4-year-old son Cayden’s physical therapy session with his home-based therapist, we had…
A few months ago, I had to make the hard decision to pull my 4-year-old son, Cayden, out of…
A few weeks ago, I discussed how we were eyeing a medication switch to Nexviazyme (avalglucosidase alfa) for my…
When my 4-year-old son, Cayden, goes to the doctor, it’s usually to see one of the many specialists for…
It’s no secret that COVID-19 has caused a lot of issues for not just the United States, but the entire…
Why I Choose to Share Our Story
When you have a child, you have so many concerns and thoughts. One came up soon after I had my…
A few days ago, my 4-year-old son, Cayden, visited one of the specialists that he sees less frequently: the…
I’m no stranger to our local urgent care clinics and hospitals. Usually, my 4-year-old son, Cayden, is the patient. Last…
When strangers notice the differences between my son, Cayden, and other 4-year-olds, they usually have a lot of questions. While…