Infantile-onset Pompe disease has caused a lot of challenges for my 4-year-old son, Cayden. Until recently, he was never able…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
It was nerve-wracking for my son, Cayden, to be the first child in Pennsylvania diagnosed with infantile-onset Pompe disease via…
Recently, my 4-year-old son, Cayden, had an appointment with his metabolic specialist. This doctor manages everything related to his…
Last week, we took my 4-year-old son, Cayden, to the cardiologist, one of the many specialists who help manage…
We’ve Found the Right Dentist
Last week, we again had to take my son, Cayden, on the dreaded 2.5-hour drive to Philadelphia. We usually make…
I knew having a child meant that I would lose a lot of sleep, but I didn’t realize the extent…
This month, we started back up with home-based therapies for my 3-year-old son, Cayden. He receives a few different services,…
When I became pregnant with my son, Cayden, at the young age of 15, I knew I had to start…
Last week, I started the dreaded process of potty training my son, Cayden, who turns 4 years old next month.
When COVID-19 Came to My House
My family had managed to avoid being exposed to COVID-19 until recently. Earlier this month, on the same…