I was 16 when I had my son, Cayden, in 2018. Being a teen parent brought its own set…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
I take pride in teaching children about disabilities. The earlier they learn, the better. These small lessons can…
Every doctor, nurse, and respiratory therapist has to start off somewhere. They don’t just jump right into their…
My 3-year-old son, Cayden, is nonverbal, which presents some communication challenges. But it isn’t the end of the…
I often have to explain my son Cayden’s rare disease to medical professionals. But sometimes, they need more help…
The holiday season is upon us again, which has me thinking about the many times in the past couple years…
A rare disease is not always visible. Just because someone may look “fine” on the outside doesn’t mean…
Every time I experience something scary with my 3-year-old son, Cayden, it really takes a toll…
Last week, I experienced every parent’s worst nightmare. When my 3-year-old son, Cayden, woke up the other day, I noticed…
Thanksgiving and Christmas are often associated with two things: food and family. But what about those who can’t eat? My…