Getting a toddler to understand things is a hard enough task by itself. However, trying to get my 3-year-old son,…
Articles by Keara Engle
Dealing with stressful situations can be hard for anyone, but I’m especially struggling because my 3-year-old son, Cayden, has been…
As a rare disease parent, I’ve dealt with many situations. Some are happy, and some are scary. The past…
Once a week, my 3-year-old son, Cayden, receives a six-and-a-half-hour infusion for his infantile-onset Pompe disease. I’ve previously shared…
When my son, Cayden, was diagnosed with infantile-onset Pompe disease, I experienced a multitude of different emotions. One of the…
All milestones that children reach are important. However, when my son, Cayden, reaches a milestone, it excites me in…
One of the symptoms of Pompe disease is muscle weakness. Due to this, many children who have been diagnosed…
On Feb. 27, 2018 at 5 a.m., my son, Cayden, entered the world. I had a fairly normal pregnancy, so…
There’s a first time for everything, and this past week was a big first for my family. We loaded up…
As special needs caregivers, we have many responsibilities. From the moment we open our eyes in the morning…