Most people love the beach. Whether it’s your first time going to the beach or not, seaside vacations,…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
One of the hardest things about being a special needs parent is all of the unknowns. Not knowing…
One of the first tests my son had as a newborn was called a newborn screening test.
The Good and Bad of IEP Meetings
At least once a year, parents of disabled children sit down with teachers, therapists, and other important people…
Although enzyme replacement infusions were initially very frightening, they have become a part of our routine. My son,…
At the young age of 15, I stared at the two bold lines on my pregnancy test and…
Some doctors specialize in one field of medicine, which requires them to go through even more education and…
When you hear the word “family,” who do you think of? Most people think of…