Now that summer is here in full force, I’ve been finding things to do with my 6-year-old son, Cayden, and…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
I was recently confronted with some scheduling issues. While it’s not the first time this has happened, it’s also not…
For the first time ever, my 6-year-old son, Cayden, enjoyed a night of bowling. We discovered a program called Kids…
As the school year comes to an end, my 6-year-old son, Cayden, had a kindergarten graduation ceremony. I was…
Last week, for the first time, I was able to watch my 6-year-old son, Cayden, participate in a field day…
Last week, I sat down with the folks who assisted my 6-year-old son, Cayden, during this past school year. The…
Note: This column describes the author’s son’s experiences with Nexviazyme and Lumizyme. Not everyone will have the same response…
House hunting isn’t easy, especially when you’re searching for an affordable wheelchair-accessible home. But thankfully, we managed to find a…
Parents never want to see their children experience anything hard or painful. Yet I can recall many times when I’ve…
Life has been a bit hectic lately. My family has many changes coming up, and each one brings its own…