It’s been a little more than 18 months since my 5-year-old son, Cayden, made the switch to…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
When you become a parent, one of the first things you must learn is patience. Sometimes you’re in a rush…
In our school district, the first two days of the holiday break were reserved for parent-teacher conferences. I quickly scheduled…
Not everybody is a morning person, myself included. Nonetheless, the whole idea of sleeping in went out the window years…
Because of his infantile-onset Pompe disease, my 5-year-old son, Cayden, has always relied on a feeding tube for…
Last week, my 5-year-old son, Cayden, had a checkup with his cardiologist, the specialist who monitors his heart. Cayden…
This year, Thanksgiving felt quite special. For starters, it was the first time I celebrated with both of my kids.
Over the summer, I lost someone very dear to my heart. My grandfather passed away on July 18 at 75…
Oftentimes, parents of children with rare diseases don’t have time to focus on themselves. We have so much on…
When I found out that I was pregnant again, I was ecstatic for my 5-year-old son, Cayden, to become a…