Last week, my youngest son, Kyree, went in for surgery at only 9 months old. I was a nervous wreck…
Keara Engle
Keara Engle is located in south-central Pennsylvania and has lived there her whole life. Keara is the mother to three little boys, Cayden, Kyree, and Kylan. Her oldest, Cayden, was born in February 2018 and was diagnosed with infantile-onset Pompe disease shortly after. He was the first baby in Pennsylvania diagnosed via newborn screening. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey.
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Articles by Keara Engle
Back in May, I wrote about searching for a more accessible playground for my 5-year-old son, Cayden. My wish…
Over the years, I’ve had to make countless hard decisions for my 5-year-old son, Cayden, who has infantile-onset Pompe…
My 5-year-old son, Cayden, will soon be getting a new kindergarten teacher. While this will be a big adjustment…
My 5-year-old son, Cayden, has been through more in his few years of life than most adults have in all…
I’ve become so used to my routines that when an abrupt change happens, it throws me off. Recently, a substitute…
I’ve been on the hunt for adaptive clothing for years now. My 5-year-old son, Cayden, does fine with regular…
My 5-year-old son, Cayden, has seen a nutritionist his entire life. In his younger years, this was important because Cayden…
For years, it’s been evident that my 5-year-old son, Cayden, has extremely sensitive skin. We first noticed the issue during…
My 5-year-old son, Cayden, is on track with most children his age when it comes to height and weight. But…