On the Road to Pompe - a Column by Dwayne Wilson

Dwayne lives in Southern California in the City of Irvine. Dwayne is a SoCal native but moved away in 1996 to experience Life in the Pacific Northwest. He moved back to Orange County in 2017 to be closer to family. Dwayne was diagnosed with Late Onset Pompe Disease in Nov 2018 when he was 50 years old. Dwayne has a passion for spreading awareness about Pompe disease and bringing hope and positivity to the community. You can find him at the beach or sporting events. Follow along with his column “On The Road To Pompe” as he shares his Journey.

How my desk job gives me freedom with Pompe disease

In elementary school, my teacher would often ask the class, “What do you want to be when you grow up?” Many kids responded that they hoped to be a doctor, lawyer, veterinarian, or firefighter. Me? I wanted to be a professional football player — specifically, the defensive end who rushes…