Powering Through Pompe – a Column by Keara Engle

Keara is located in south-central Pennsylvania and has lived there her whole life. Keara is a single mother to a little boy with Pompe disease who was born in 2018. She hopes that her column, “Powering Through Pompe,” will bring comfort to those that are also dealing with Pompe disease. She remembers how scary it was when her son was first diagnosed and wants to help guide others through their journey. Keara is excited for this opportunity and is proud to be working with this site's publisher, BioNews.

Cold and flu season hit our home hard this year

For the past two weeks, my children and I have been unable to catch a break from the common cold. It all started with my 6-year-old son, Cayden, who brought home an illness from school. It’s inevitable during cold and flu season, but it sure makes for a miserable experience.

My son with Pompe disease received a school courage award

My 6-year-old son, Cayden, absolutely loves going to school. He’s doing exceptionally well in first grade. A few weeks ago, during routine testing, Cayden received the highest scores in the entire class. I’d be lying if I said I didn’t brag a little to friends and family about the high…