The Pondering Pompe Parent - a Column by Anthony Wu

Anthony Wu lives in New York and has a child with Pompe disease, Eugene, diagnosed through newborn screening in 2018. He hopes to share their path as well as the stories and journeys of other wonderful members in the Pompe community. Anthony is also part of the community advisory board for both the International Pompe Association and Acid Maltase Deficiancy Association.
January 10, 2025 Columns by Anthony Wu

How we’re constantly learning about the Pompe diet and exercise

Our 6-year-old child, Geno, who was diagnosed with Pompe disease via newborn screening, has for years told classmates he can’t eat candy. During snack time, at friends’ birthday parties, or holidays like Halloween, sometimes he’ll say he’s allergic to it. Luckily, we have a great group of kids…

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