A rare scheduling snafu catches me off guard

This columnist is usually on top of appointments, but mistakes sometimes happen

Keara Engle avatar

by Keara Engle |

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I was recently confronted with some scheduling issues. While it’s not the first time this has happened, it’s also not very common. I was on my way to the lab to take my glucose test for my current pregnancy when I received a text from our home nursing agency’s case manager for my 6-year-old son, Cayden. She said she was on her way to our house for Cayden’s routine visit.

She manages the nursing that Cayden receives while he’s at school. Although he just finished his last day of kindergarten earlier this month, his case remains open. These visits will continue every couple weeks because Cayden will still need a nurse when summer break ends and school is back in session.

Having a nurse at school will probably be necessary for some time because Cayden is in a wheelchair and needs a little extra help due to his infantile-onset Pompe disease. This is noted in his individualized education program. The nurse helps with toileting, administering his gastrostomy tube feeds, and getting him around the school.

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When I received the text, I quickly replied to let her know that we weren’t home. I’d completely forgotten about the scheduled visit and was almost at the lab. I felt terrible, but thankfully, she was very understanding.

We quickly agreed to reschedule for the next day. In the end, everything worked out fine, which was a huge relief.

I couldn’t believe that I’d overbooked myself and had to reschedule the visit at the last minute. I’m blaming it on pregnancy brain! It also didn’t help that the week was already out of whack because we ended up having to do Cayden’s biweekly enzyme replacement infusion a day early.

The infusion nurse had texted me to ask if she could come early because something urgent had come up on the originally scheduled day. We agreed and were able to get it done a day early. However, that threw me off for the rest of the week.

I’m sure this won’t be the last time something like this happens, but I hope it doesn’t occur again anytime soon. I’m the type of person who likes to have my schedule in check. I always commit myself to doing something as I’ve planned it. However, I’m only human, and it’s bound to happen once in a while.

Note: Pompe Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pompe Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Pompe disease.


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