cardiologist

Last week, my 5-year-old son, Cayden, had a checkup with his cardiologist, the specialist who monitors his heart. Cayden has been seeing a cardiologist since he was just 1 month old. Back then, his heart was severely affected by his infantile-onset Pompe disease. It has since corrected…

Last week, we took my 4-year-old son, Cayden, to the cardiologist, one of the many specialists who help manage Cayden’s complex medical needs. He has been visiting the cardiologist since he was diagnosed with infantile-onset Pompe disease at just 1 month old. When Cayden was diagnosed, he was already…

Late-onset Pompe disease (LOPD) can affect a number of different organs and systems in the body. If you have the disorder, you will need to see a multidisciplinary treatment team to ensure you receive the best possible care. Read on for more information about some of the complications that…

If your child has been diagnosed with infantile-onset Pompe disease (IOPD), you may need a multidisciplinary team of specialists to ensure the best care possible. IOPD causes a buildup of glycogen (a large sugar molecule that the body uses to store energy), due to a lack or low levels…