After a couple of years without, we’re trying orthotic devices again

Ever since he was an infant, my son Cayden, who’s now 7, has needed to use orthotic devices. He was diagnosed with infantile-onset Pompe disease via newborn screening, and these devices seem to be common among that community. His journey with orthotic devices started when he was a few…

My Son Has Used Several Types of Orthotic Braces Due to Pompe Disease

One of the symptoms of Pompe disease is muscle weakness. Due to this, many children who have been diagnosed with infantile-onset Pompe disease will be required to wear some type of orthotic braces that are specially designed by an orthotist. When my son, Cayden, was about 15 months old,…