food

My son, who requires tube feeding, is upset he can’t eat orally

Because of his infantile-onset Pompe disease, my 5-year-old son, Cayden, has always relied on a feeding tube for nutrition. For the first six months of his life, he used a nasogastric, or NG, tube. After that, he needed something more permanent, so he underwent surgery to have a…

High-protein Diet for Pompe Disease

Pompe disease is a rare disease in which glycogen, a complex sugar molecule, builds up in cells and tissues. This buildup interferes with function, especially in muscles. Changes to diet and feeding methods may help alleviate or slow the progression of some disease symptoms. One dietary…