headaches

Shoshin for Adults Living With Pompe Disease

If you have a chronic disease such as late-onset Pompe disease, a Japanese concept called shoshin may help you to perceive the world, and your disorder, in a different light. Based on Zen Buddhism, shoshin means “beginner’s mind.” What is Pompe disease? Pompe disease is a debilitating and…

Spoon Theory for Late-onset Pompe Disease Patients

If you have late-onset Pompe disease, you’re likely dealing with muscle weakness, aches, and cramps, and possibly headaches and fatigue. Many people may not understand how overwhelming all this can be, and it may not always be easy to explain. However, an analogy called the spoon theory can help…