preschool

Switching Therapists Has a Big Impact on Our Lives

My 4-year-old son, Cayden, has been receiving multiple therapies every week for years. He started physical therapy when he was an infant, then speech therapy, and eventually occupational therapy. All are important for those with infantile-onset Pompe disease, which Cayden was diagnosed with at just 1 month.

Making Hard Decisions for My Child With a Rare Disease

Although my 3-year-old son, Cayden, loves preschool, I had to make a tough decision not to send him for a while. We have officially entered cold and flu season. While most parents don’t look forward to this time of year, it’s especially terrifying for me. Cayden’s infantile-onset Pompe disease…