Skip to content
Pompe Disease News logo
  • About Pompe
    What is Pompe disease?
    Types
    Symptoms
    Causes
    Diagnosis
    Treatment options
    • Lumizyme
    • Nexviazyme
    • Pombiliti + Opfolda
  • News
  • Columns
    Powering Through Pompe — Keara Engle
    Archived columns
    • The Pompe Community Diaries – Anthony Wu
    • On the Road to Pompe — Dwayne Wilson
  • Featured topics
    Living with Pompe
    • Pompe service dog
    • Adaptive clothing
    • Living with Pompe disease
    • ERT and enzyme stabilizers
    • The ERT process
    • Your daily routine with LOPD
    • Adaptive equipment
    • Late-onset Pompe disease
    • Dwayne’s story
    • Expert voice: Safe and effective exercise
    • View all
    Pompe pathways
    • ERT home infusions
    • Therapeutic crossroads
    • Tips for caregivers
    • Maximizing doctor’s appointments
    • Building an LOPD care team
    • Financial planning with Pompe
    • Work and Pompe
    • Occupational therapy
    • Pompe and pain
  • FAQs
  • Advocacy partners
  • What can we help you find today?

September 27, 2022 Columns by Keara Engle

I Am Not a Superhero for Raising a Child With Pompe Disease

Having a child with a rare disease can certainly be challenging at times, but it doesn’t make us superheroes. We’re often called this by people with typical children or no children at all. The truth is that we’re just like everyone else. We don’t have magical superpowers, nor do…

May 11, 2021 Columns by Keara Engle

Becoming a Special Needs Mom Influenced My Future Career Choice

At the young age of 15, I stared at the two bold lines on my pregnancy test and immediately burst into tears. How would I do this alone? I was only a sophomore in high school. I had no clue how I’d finish school and take care of…

Recent Posts

  • COL13A1 gene levels may link to Pompe neuromuscular dysfunction
  • Having a nurse at home over the summer has been a big help
  • GC301 gene therapy improves motor function in IOPD children


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.