Anthony Wu lives in New York and has a child with Pompe disease, Geno, diagnosed through newborn screening in 2018. He hopes to share their path as well as the stories and journeys of other wonderful members in the Pompe community. Anthony is also part of the community advisory board for the International Pompe Association.
In this column, I’m introducing what I call “The Pompe Community Diaries,” a series that will follow the journeys, musings, and challenges of the fellow Pompe disease patient community. I’ll collaborate with community…
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