The Pompe Community Diaries
— Anthony Wu

Banner image for Anthony Wu's column, "The Pompe Community Diaries"

Anthony Wu lives in New York and has a child with Pompe disease, Geno, diagnosed through newborn screening in 2018. He hopes to share their path as well as the stories and journeys of other wonderful members in the Pompe community. Anthony is also part of the community advisory board for the International Pompe Association.

February 14, 2025 Columns by Anthony Wu

A Pompe patient’s journey to becoming Ms. Wheelchair Alaska

“The Pompe Community Diaries” is a series that follows the journeys, musings, and challenges of those in the Pompe disease patient community. This week, I’m introducing Katy Arvidson, who is the current Ms.

Read more

Recent Posts


Explore more columns

  1. Banner image for Anthony Wu's column,

    A Pompe patient’s journey to becoming Ms. Wheelchair Alaska
  2. main graphic for the column

    Cold and flu season hit our home hard this year
  3. Banner image for Anthony Wu's column,

    A patient’s experience addressing mental health and Pompe disease
  4. main graphic for the column

    Using social media to connect with other Pompe disease families
  5. main graphic for the column

    My son with Pompe disease received a school courage award

  6. From basic training to treatment: An 8-year Pompe diagnosis journey