The Pondering Pompe Parent
— Anthony Wu
Anthony Wu lives in New York and has a child with Pompe disease, Eugene, diagnosed through newborn screening in 2018. He hopes to share their path as well as the stories and journeys of other wonderful members in the Pompe community. Anthony is also part of the community advisory board for both the International Pompe Association and Acid Maltase Deficiancy Association.
Switching to Pombiliti + Opfolda may help boost mobility in LOPD
Switching from Lumizyme (alglucosidase alfa) to Pombiliti + Opfolda (a combination of cipaglucosidase alfa and miglustat) may help patients with late-onset Pompe disease move around more easily, suggesting a shift toward…
Read more