The Pondering Pompe Parent
— Anthony Wu

Banner for Anthony Wu's "The Pondering Pompe Patient" column

Anthony Wu lives in New York and has a child with Pompe disease, Eugene, diagnosed through newborn screening in 2018. He hopes to share their path as well as the stories and journeys of other wonderful members in the Pompe community. Anthony is also part of the community advisory board for both the International Pompe Association and Acid Maltase Deficiancy Association.

January 21, 2025 Columns by Keara Engle

My son with Pompe disease received a school courage award

My 6-year-old son, Cayden, absolutely loves going to school. He’s doing exceptionally well in first grade. A few weeks ago, during routine testing, Cayden received the highest scores in the entire class. I’d be…

January 17, 2025 Columns by Anthony Wu

From basic training to treatment: An 8-year Pompe diagnosis journey

In this column, I’m introducing what I call “The Pompe Community Diaries,” a series that will follow the journeys, musings, and challenges of the fellow Pompe disease patient community. I’ll collaborate with community…

January 10, 2025 Columns by Anthony Wu

How we’re constantly learning about the Pompe diet and exercise

Our 6-year-old child, Geno, who was diagnosed with Pompe disease via newborn screening, has for years told classmates he can’t eat candy. During snack time, at friends’ birthday parties, or holidays like…