Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions.
Advocacy Partners
We are honored to partner with nonprofit advocacy organizations to amplify their missions, share helpful resources, and ensure patients and families have access to information that supports everyday decision-making. The information featured below was provided by our advocacy partners as part of this collaboration.
The mission of the Pompe Warrior Foundation is to promote research, educate, and empower individuals and families affected by Pompe Disease and other Lysosomal Storage Diseases.
Pompe Alliance is a nonprofit organization dedicated to supporting individuals affected by Pompe disease, a rare and progressive genetic disorder. Founded in 2018, the organization aims to provide education, resources, and supportive services to patients, caregivers, medical professionals, and community stakeholders.