Kate’s Take on Rare Care
— Kate Manger

Kate Manger lives near Chicago with her husband and three children. In 2016, her middle daughter, Caroline, was diagnosed with late-onset Pompe disease and began enzyme replacement therapy within her first year. Shortly after Caroline’s diagnosis, Kate’s oldest daughter, Evelyn, was diagnosed with alopecia universalis. Kate’s mission is to be approachable and helpful to those experiencing the world of rare for the first time. She is also a patient advocate for her daughters and works to ensure the diseases they have do not define them or limit their daily lives.

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