Advocacy Partner: Pompe Warrior Foundation
About the Pompe Warrior Foundation
The mission of the Pompe Warrior Foundation is to promote research, educate, and empower individuals and families affected by Pompe Disease and other Lysosomal Storage Diseases. We hope to highlight the importance of diet in treating these diseases. We will support research into new dietary treatments and utilize that research to educate individuals and the medical community. We hope to create a happy and healthier lifestyle for all involved. We will empower patients, families, and medical professionals to explore how dietary changes may play a role in treating these rare diseases.
Contact: Anne St Martin – Executive Director
Phone: 630-670-6569
Email: [email protected]
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- How a Pompe disease diagnosis both tested and transformed our marriage
- New Phase 2 trial tests oral add-on therapy for late-onset Pompe disease
- My journey of learning how to explain Pompe disease to others
- Early trial of late-onset Pompe disease drug yields positive results
- Part of our journey was learning how to talk to our children about Pompe
