Amid the chaos of the holidays, our family experienced a little more than we bargained for. The day after Christmas,…
Articles by Keara Engle
Living in Pennsylvania means having to deal with some pretty brutal winters. We do get to experience all four seasons,…
My 6-year-old son, Cayden, has been using a feeding tube since he was a newborn. Although I feared the tube…
Weight gain is something my 6-year-old son, Cayden, has struggled with his whole life. He had difficulty eating as a…
It’s no secret that the holiday season is a busy time for everyone, but imagine having to incorporate a 6.5-hour…
My 6-year-old son, Cayden, has been seeing an ear, nose, and throat (ENT) doctor since he was about 2 years…
I recently attended a meeting for my 6-year-old son, Cayden, at his elementary school. So many people are working with…
It’s been over six years since my son Cayden was born with infantile-onset Pompe disease. Today, I consider myself…
Next week, my 6-year-old son, Cayden, will celebrate something even more exciting than Halloween: He’ll be headed to…
Recently, I read an article here at Pompe Disease News that brought me back to six years ago, when my…