Columns

Increasing a dose of medicine can be nerve-wracking

Note: This column describes the author’s son’s experiences with Nexviazyme and Lumizyme. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy or changing its dose. My 6-year-old son, Cayden, has received infusions of enzyme replacement therapy for the entirety…

A new wheelchair-accessible home is perfect for my son with Pompe

House hunting isn’t easy, especially when you’re searching for an affordable wheelchair-accessible home. But thankfully, we managed to find a beautiful one that fits our monthly budget for rent, and drumroll … it’s wheelchair accessible! We’ve been planning to move for quite a while. My 6-year-old son, Cayden, isn’t…