Advocacy Partner: Pompe Alliance

Pompe Alliance is a nonprofit organization dedicated to supporting individuals affected by Pompe disease, a rare and progressive genetic disorder. Founded in 2018, the organization aims to provide education, resources, and supportive services to patients, caregivers, medical professionals, and community stakeholders.

A few services that Pompe Alliance offers are information on treatment, advocates for those affected by the disease, provides financial assistance for durable medical equipment and travel to and from medical appointments, patient mentoring, and quarterly education/support groups. If you have any questions or would like additional information you can find us on Facebook and Instagram, and you can email us at [email protected]. You can also check out our website at www.pompealliance.com for additional information about our programs and services and to learn more about Pompe Disease.

Contact: Heather Shorten – Executive Director
Phone: 216-338-5736
Email: [email protected]

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