Advocacy Partner: Pompe Warrior Foundation
About the Pompe Warrior Foundation
The mission of the Pompe Warrior Foundation is to promote research, educate, and empower individuals and families affected by Pompe Disease and other Lysosomal Storage Diseases. We hope to highlight the importance of diet in treating these diseases. We will support research into new dietary treatments and utilize that research to educate individuals and the medical community. We hope to create a happy and healthier lifestyle for all involved. We will empower patients, families, and medical professionals to explore how dietary changes may play a role in treating these rare diseases.
Contact: Anne St Martin – Executive Director
Phone: 630-670-6569
Email: [email protected]
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- Study finds milder heart issues in late-onset Pompe disease
- I’ve had to learn how to keep living in the waiting room of rare disease
- Pompe study ties high antibodies to infusion reaction risk
- Home infusions take us to as close to normal as I ever thought we’d get
- Immune changes seen in late-onset Pompe may affect treatment response
