Haley Hayes, a Pompe patient advocate, shares what health benchmarks have felt underrated in her care.
Transcript
Maybe looking at a patient’s lab results instead of their whole self and, you know, without doing an exam, and just basing it all on lab results. I think that is a little overrated.
A person’s nutrition status, and as well as sometimes doctors not doing enough, like tests or like follow-up tests like six-minute walk test as we do in PT and that kind of thing.
I feel like that can be a little underrated.
