How my son with Pompe disease inspired my fitness journey

I have always struggled with my weight. In elementary school, I remember visiting a nutritionist and coming up with a diet plan. Over the years, I’ve tried multiple times to implement a diet and exercise regimen, but I could never seem to stick to it.

Now, I’m taking things a bit more seriously. I’ve known for about four years that I have fatty liver disease. There are two types of fatty liver disease: one is alcohol-related, and the other is more commonly seen in people with obesity, type 2 diabetes, or other medical conditions. Mine was caused by being overweight for most of my life.

As a result, I’ve had to learn to listen to my body in recent years. At 23 years old, I’d get winded from climbing a flight of stairs or walking to the playground with my kids. Not only was it embarrassing, but it was worrisome as well. I have to be in good shape so that I can continue doing all of the fun things that my children deserve to enjoy.

Recommended Reading

December 3, 2024 Columns by Keara Engle

Investigating the cause of my son’s recent weight loss

What really sparked my interest in beginning my weight loss journey was my 7-year-old son, Cayden, who has infantile-onset Pompe disease. I’ve watched him work so hard in his physical therapy sessions, never failing to try his best, even with new or challenging tasks. Even at his young age, he inspires me.

If Cayden can work hard and keep his body moving, then so can I! I’ve been going to the gym for almost three weeks now, and while it hasn’t been easy, I know it will be worth it. I take a rest day when needed, but I try to go every day, even if I’m just doing some good cardio and using light weights. My goal isn’t to be the smallest or the strongest person, but to be consistent and stay active.

Before, I’d start working out and stick to it only for a few days. I’d overexert myself and be so sore that I regretted going to the gym and had no desire to return. But this time is different. I’ve done more research and have a workout plan in place, so I’m not just wandering around the gym wondering what to do next.

My biggest excuse has always been that I couldn’t find time to work out while raising three children. However, my sister has been an amazing help lately. Once the kids are asleep in their beds, she stays with them at my house so that I can go to the gym. I find this to be the easiest time for both a babysitter and me. (I’m not a morning person!)

I’ve watched some of my family members struggle with their health as they’ve aged, and I want to get ahead of my own health issues before they become detrimental. I want to watch my kids grow old, meet my great-great-grandchildren, and just treat my body with the kindness it deserves. We have only one body, and it’s about time I take my health seriously.

Note: Pompe Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pompe Disease News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Pompe disease.