Last week, my 4-year-old son, Cayden, had a telehealth appointment with a pediatric psychologist. She works in the behavioral health clinic at the children’s hospital where we take Cayden for all his other specialists. The appointment was recommended by his metabolic doctor, whom we see every three to…
Behavioral therapy
Recent Posts
- When a medical trip feels like a vacation to a child with rare disease
- Newborn screening finds more presumed LOPD cases than expected
- How I’m building a full life while living with Pompe disease
- Chronic pain affects more than 80% of late-onset Pompe disease patients
- How my daughter’s medical backpack became a symbol of freedom