Karen Kacures, Pompe disease patient advocate, shares why bringing your medical records, test results, and other important documents to appointments can help improve communication and coordination among your healthcare providers.
Transcript
I think they could help by getting the patient’s records. If there’s anything that that particular doctor would need to know, they can get the records ready.
Print them off because sometimes they don’t always find them in their charts, or they could somehow get them to the doctor beforehand so the doctor could see what needs to be done.
If you see multiple doctors for the same disease, or maybe they have different abilities.
One might be a treating doctor, one might be for physical therapy or cardiology, or depending on who they are, it’s really good to have like a folder and bring all your records and test results in to the doctor so that they can’t say, “Well, I never got that.” That type of thing.
I always physically bring in the results.
