Haley Hayes, a Pompe patient advocate, discusses the importance of balancing urgency with careful decision-making when considering treatment options.
Transcript
I think the balance of acting fast, but not too fast, on treatment options is when you don’t want to go, you want to act fast.
You don’t want to act so fast where you don’t have all the information because you want as much information as you want. And you want to get all your questions answered that need to be answered that are really important. And not just really important. Every question is important because it has to deal with with you and your own health.
So I think moving relatively fast, but not moving so fast where you’re missing out on a whole bunch of information that you wanted to get covered or needed to get covered.
